August the 20th is always a tough day. It’s the anniversary of my brother’s death and I always phone home. It’s hard to hear your mum cry from 7,000 miles away and not be able to give her a hug.

David was born in October 1968 with Cystic Fibrosis, a genetic disorder that affects the lungs, liver, pancreas, and intestines and of course has a major effect on virtually every aspect of it’s victim’s life. At the time, there wasn’t a lot known about this disease even by doctors and he was mis-diagnosed for the first two years of his life as suffering from colds, flu, suppressed immune system, asthma and God knows what else, before a canny GP referred my worried parents to a consulting professor at Auckland Hospital, who was delving into CF and recognized the symptoms.

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